Augustine Heights resident Nichola MacNeil is using her voice—a voice she once lost—to raise awareness of a little-known yet life-changing condition: dysphonia, ahead of World Voice Day.
Local Advocate Shares Personal Struggle
Nichola MacNeil, a long-time resident of Augustine Heights, is drawing attention to World Voice Day, observed on 16 April. Ms MacNeil has been living with Spasmodic Dysphonia for five years.
While she was initially left unable to speak, Nichola has since regained a functional voice—though it still fluctuates and presents ongoing challenges. Despite this, she continues to be an active part of her community.
“There was a time I couldn’t even pronounce my own name,” Nichola shared. “I was unable to communicate with my three beautiful children, husband or friends. My business was falling apart as I was no longer able to speak.”
At her lowest point, Ms Macneil felt devastated and isolated due to the lack of available support. Since then, she has become an ambassador for the Australian Dysphonia Network (ADN). Ms Macneil advocates for greater recognition and support for those affected by voice disorders.
“At this present time I’m able to speak and have a functional voice (this fluctuates),” she said. “In the beginning I was left devastated, unable to speak. My mental health reached very low points—a place I never want to experience again.”
“I’ve been teaching free yoga for cancer for the last 12 years,” she said, “with an 18-month break when I couldn’t even pronounce my name. I also delivered Encore, a free eight-week program for women who have had breast cancer.”
The Impact of Chronic Voice Disorders
Dysphonia, including Spasmodic Dysphonia, can result from various causes such as laryngeal damage, underlying health conditions and neurological factors. The disorder affects approximately one in every 100,000 people in Australia and New Zealand. Dysphonia disrupts personal communication. It can lead to severe social and professional consequences. Individuals in voice-dependent occupations like teaching, sales, or performing are particularly affected.
Currently, there is no formal recognition of voice disorders as a disability in Australia. This gap means those unable to work or requiring time off to rest their voices receive little financial support. Advocates, including Ms MacNeil, argue that this needs to change. They highlight that the ability to communicate should be valued as highly as other fundamental senses.
World Voice Day Initiatives
Along with World Voice Day, the Australian Dysphonia Network promotes the “World Voice Day Walk.” The walk is part of its awareness campaign. The event encourages people to walk while discussing the importance of vocal health. There are no registration fees or distance requirements. Participants can join at their own pace throughout April.
The ADN also plans to illuminate notable landmarks in its “Light Up” campaign. This initiative will bring attention to the challenges those with chronic voice disorders face. Individuals can also contribute by setting up fundraising pages and direct donations to support ongoing advocacy efforts.
Community Involvement and Support
Ms MacNeil has remained active in her community despite her struggles. She has taught cancer survivors free yoga classes for over a decade. She has also been involved in the “Encore” program. Through the program, Ms Macneil offers support to women recovering from breast cancer.
Ms MacNeil urges the Augustine Heights community to support World Voice Day. Locals can help amplify the message that voice disorders deserve greater recognition and support by sharing stories and joining the walk.
Published 3-Apr-2025
